How long must a cancer registry follow a cancer patient?

How long will a cancer registrar follow up on a patient?

A 90 percent follow up rate is maintained for all eligible analytic cases diagnosed within the last five years or from the cancer registry reference date, whichever is shorter.

What is the required follow up rate for a cancer registry?

The Commission on Cancer (CoC) of the American College of Surgeons (ACoS) requires approved cancer programs to meet or exceed the target rate of 90 percent successful follow-up. SEER cancer registries must meet or exceed 95% successful follow-up.

How long is information maintained in a cancer registry?

When asked how many years of data the CCRs have available, 20 (87%) respondents said that they had more than 10 years of data available, two (9%) had between six and 10 years of data available, and only one respondent’s registry has zero to five years of data available.

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When are patients considered lost to follow up in a registry?

Lost to follow-up is when the status of the patient has not been confirmed more than 15 months after the date of last contact.

What does a cancer registry do?

A cancer registry is an information system designed for the collection, storage, and management of data on persons with cancer. Registries play a critical role in cancer surveillance, which tells us where we are in the efforts to reduce the cancer burden.

Are cancer registrars in demand?

The Registrar’s New Role An estimated 7,300 cancer registrars are currently in the workforce, and by 2021, it is projected that at least 800 new registrars will be needed to meet demand. 1 One fac- tor affecting both supply and demand is the new role of the cancer registrar.

What is follow up in cancer registry?

Follow-up information provides the documentation of residual disease or its spread, recurrences, or additional malignancies. Subsequent treatment is included in the cancer registry database.

What is cancer registry abstracting?

Abstracting. Abstracts organize and summarize information in a patient’s medical record for each independent tumor The abstract includes patient data about demographics, diagnostic studies, cancer staging, treatment, and follow-up.

What follow up rate does the COC require accredited cancer programs to meet for all eligible analytic patients from the cancer registry reference date?

For all eligible cases, an 80 percent follow up rate is maintained from 2004 or the cancer registry reference date, whichever is shorter. A 90 percent follow up rate is maintained for all eligible analytic cases diagnosed within the last five years or from the cancer registry reference date, whichever is shorter.

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Do all states have a cancer registry?

Before the NPCR was established, 10 states had no registry, and most states with registries lacked the resources and legislative support they needed to gather complete data. Today, the NPCR supports central cancer registries in 45 states, the District of Columbia, Puerto Rico, and the US Pacific Island Jurisdictions.

Who usually collects and maintains cancer registry data?

Cancer registrars—also known as tumor registrars—are highly trained data management experts who collect and process cancer data.

What type of information does a cancer registrar maintain within a cancer registry?

Cancer registries maintain a wide range of demographic and medical information: Demographic information: age, gender, race/ethnicity, birthplace, and residence.

Is death considered lost to follow up?

In clinical medicine and research, loss to follow up refers to a person who has not returned for continued care or evaluation (e.g., because of death, disability, relocation, or drop-out).

What is acceptable loss to follow up?

A good rule of thumb is that <5% loss leads to little bias, while >20% poses serious threats to validity. However, even less than 20% loss to follow-up can be a problem. Considering a worst-case scenario can help determine whether loss to follow-up poses a potential threat to validity.

Why are patients lost to follow up?

Common reasons for loss to follow-up were social or structural. These included problems with transportation, finances, and work/child care responsibilities. Among those lost to follow-up, subsequent outcomes were heterogeneous.